How I came to this blog

For as long as I can remember I had been so excited about my 30th birthday. It was going to be a big year for me, I could feel it. I had no idea a breast cancer diagnosis would turn out to be the reason. I was actually told I had "early breast cancer" at 29, about three weeks before my 30th birthday. What I had is called Ductal Carcinoma In Situ (DCIS), which is also considered "stage 0 breast cancer." While it was caught at the earliest possible stage, and my life was never in immediate danger, I still had to undergo mastectomy, including lymph node removal, and reconstruction. My birthday came and went a couple weeks before my mastectomy. More than once I looked down at the "F 30" on my hospital bracelet and wondered, "where did my 30th birthday go?" This will definitely be an interesting year.















Saturday, March 22, 2014

Don't Stop Getting Mammos

This past week, my mom and I attended a discussion on breast cancer at Memorial Sloan Kettering Cancer Center (MSKCC). The talk was part of an ongoing series at MSKCC called CancerSmart:
"Memorial Sloan Kettering experts discuss the latest information on cancer-related topics, as well as advances in diagnosis, treatment, and research at our CancerSmart talks. We believe the more you know, the better equipped you will be to make informed choices about your health. 
Programs are presented in the fall and spring on Manhattan’s Upper East Side. They are free and open to everyone. They are also available via live webcast. Join the conversation on Twitter at #CancerSmart."
Here are 5 takeaways I got from the interesting and engaging panel discussion.

Wednesday, March 19, 2014

New Support Group on Long Island

One of the awesome resources offered by Young Survival Coalition (YSC), the breast cancer organization I volunteer with as a State Leader, is the F2F Networking program.

YSC "offers resources, connections and outreach so women feel supported, empowered and hopeful" and F2F (Face 2 Face) Networks offer all those things at once. 

According to the YSC website, "Local YSC Face 2 Face networks are support and networking for Young Women Affected by Breast Cancer (YWABC). YSC F2F networks are local grassroots groups that allow you and other YWABC in your community to connect!"

Before each of my breast cancer surgeries I attended these F2F meetings at the New York City headquarters of YSC. They were, and still are, called "WOW" meetings (Women on Wednesdays. Yes, we love our acronyms at YSC!). These meetings were so much more than support group gatherings. I met many strong women who, while going through a difficult time themselves, just wanted to reach out to other women like them to share information and resources they'd come across.

Saturday, March 1, 2014

FREE Breast Cancer Talks in NYC; Food Delivery in TX; Paxil & Breast Cancer Risk


RESOURCES: This new resource has been added to the right frame

The Hippo Kitchen - Food Delivery to Cancer Patients in Texas
I learned about this food delivery service from the article "Catering to Cancer Patients" by Leesha Lentz, in the December 2013 issue of Today's Dietitian. According to the service's website: "The Hippo Kitchen, located in Houston, TX sells, produces and delivers nutritionally supportive meals to people preparing for cancer treatment, undergoing cancer treatment and to those who have completed their treatment. We specialize in meals comprised of ingredients that have been proven to combat cancer and the many effects of treatment."


FREE: Two Upcoming Talks in NYC from Memorial Sloan Kettering

Sunday, November 10, 2013

FREE Exercise Program for New York Cancer Patients and Survivors

 
In 2009 the American College of Sports Medicine formed a panel of researchers to develop exercise guidelines for cancer patients and survivors.

At the time, doctors were telling their cancer patients to avoid exercise but the panel found that physical activity "is safe during and after cancer treatments and results in improvements in physical functioning, quality of life, and cancer-related fatigue in several cancer survivor groups."

Strength for Life, based in New York, is working to spread this news and make fitness programs accessible to cancer patients and survivors "regardless of location and financial limitations."

Thursday, October 31, 2013

The Girl With the Breast Cancer Tattoo


Last month I learned that an organization called Personal Ink (P.INK) was organizing an event to provide 10 breast cancer survivors with tattoos to cover or enhance their mastectomy scars. 

Now, I had spent the past 3 years considering getting a mastectomy tattoo to encapsulate and honor all that my husband and I had gone through during my breast cancer journey. I wanted to have something I could keep with me forever to remind me of not only the bad things but also all the good things that came of our experience. I had gotten the idea from a book I read (and re-read) before each of my two surgeries. My doctor had offered nipple reconstruction (creating a nipple out of the skin on the breast area) and/or nipple tattooing (coloring the area with permanent ink to create the appearance of a nipple). This just did not resonate with me. But when I read Why I Wore Lipstick to My Mastectomy by Geralyn Lucas, I felt I understood her decision when, at the end of the memoir, Geralyn got a tattoo near her mastectomy scar.

P.INK DAY would take place in Brooklyn, New York (where I live) on October 21, 2013 -- 3 years to the day my doctor called to confirm that cancerous cells had been found in my breast tissue. Just days before learning of the event I was thinking this month felt right for getting my tattoo. The whole thing sounded too good to be true. If it was true, it was meant to be.


Wednesday, September 25, 2013

New York Cancer Events, Support Groups & More

One of the reasons I started this blog (besides keeping my family posted) was to have a place to collect all the super helpful cancer resources I come across and this month, I've got some really great stuff for you!

There are a couple conferences I want to share, a couple support groups, and I've added a couple new websites to the resource list (in the right frame). The conferences & support groups take place in Manhattan, Brooklyn and Long Island..and they are coming up soon, so act fast!

Monday, July 15, 2013

My New Position with Young Survival Coalition

 Hi everyone,

Some great new updates:

1. I have a beautiful new nutrition & fitness website at www.pieceocakenutrition.com

2. I have started teaching Zumba classes and will be holding an event next month, Friday August 9 @ 7P and Sunday August 11 @ 11A, at 440 Studios, 440 Lafayette, near Astor Place (in Manhattan). Only $10 per class or $18 for both. We are going to have so much fun! No previous Zumba or dance experienced required to have fun at this dance fitness party! Details & RSVP form can be found here: http://www.pieceocakenutrition.com/zumba.html

3. Last but not least, I have an exciting announcement about my volunteer work with the Young Survival Coalition...